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Find Medically Complex Experienced Medical Doctors and Clinics

We have collected recommendations and researched key providers for individuals with medically complex needs. These doctors and clinics are recommended be members of our MCC community and are highly regarded.  If you are looking for a specialist or clinic that could meet your needs, please search out database.

Our databases are always growing. If there are professionals you recommend, please share their information and why the provider(s) should be on our list.

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Doctors and Clinics

Postural Orthostatic Tachycardia Syndrome (POTS)

Maryland

Clinic

Pediatric Postural Orthostatic Tachycardia Syndrome (POTS) Clinic

888.554.2080

Baltimore

Collaborative program between Kennedy Krieger Institute and The Johns Hopkins Hospital that provides the best outcomes for children with POTS. Provides medical evaluations and the most recent treatment options designed to improve overall health and quality of life.

Primary Care

Virginia

Julia Stanford

Julia Stanford MD Concierge Medicine

703.810.7166

Annandale

Concierge Medicine

Psychiatry

Pulmonology

Rett Syndrome (RTT)

Maryland

Clinic

Rett Syndrome and Related Disorders Clinic

888.554.2080

Baltimore

Through its�Neurology and Neurogenetics Clinic, is one of the few healthcare providers in the mid-Atlantic that diagnoses and treats Rett syndrome

Rheumatology

Spina Bifida and Related Conditions

Maryland

Clinic

Center for Spina Bifida and Related Conditions at Kennedy Krieger

888.554.2080

Baltimore

Cares for children and adults with spina bifida, myelomeningocele (meningomyelocele), myelodysplasia and other related conditions of the brain and spine. The center's interdisciplinary approach provides quality medical care that focuses on optimizing health and function, preventing secondary conditions and coordinating healthcare services.

Spinal Cord Injury

Maryland

Clinic

International Center for Spinal Cord Injury (ICSCI) at Kennedy Krieger

888.923.9222

Baltimore

Helps children and adults with spinal cord injuries and paralysis caused by accidents, strokes, tumors, birth defects and other causes.

Sturge-Weber Syndrome

Maryland

Clinic

Hunter Nelson Sturge-Weber Syndrome Center at Kennedy Krieger

443.923.9569

Baltimore

Providing the highest quality of comprehensive care for patients with Sturge-Weber syndrome. Expert team including neurologists, dermatologists,�ophthalmologists, neuropsychologists, physical therapists, occupational therapists and medical rehabilitation specialists. Advances knowledge of Sturge-Weber syndrome through research that spans basic science, translational research and clinical trials, and train pediatricians. �

Traumatic Stress

Maryland

Clinic

Center for Child and Family Traumatic Stress at Kennedy Krieger

443.923.5980

Baltimore

Tuberous Sclerosis

Maryland

Clinic

Tuberous Sclerosis Clinic at Kennedy Krieger

888.554.2080

Baltimore

One of about 25 clinics in the United States dedicated specifically to the care of individuals affected by tuberous sclerosis complex (TSC) and their families

Urology

Virginia

Rachel Selekman

Children's National Hospital (CN) and Pediatric Specialists of Virginia (PSV)

CN: 888.884.2327; PSV 703.876.2788

Fairfax

DC and VA

Urology

DC

Rachel Selekman

Children's National Hospital (CN) and Pediatric Specialists of Virginia (PSV)

CN: 888.884.2327; PSV 703.876.2788

Washington

DC and VA

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